Welcome to the breasts, balls and bone blood gang

We met at a Mindfulness course at the Maggie’s Centre in Nottingham. I will write separately about the course, what I got from it and how I use mindfulness in my life these days – that deserves a whole post to itself.

One thing I do want to mention now though was the burgeoning of a new support system and friendships with some of my fellow course participants and a renewed connection with the Maggie’s Centre, which I had not visited since I stopped receiving counselling last year.

Some of the course participants decided to continue meeting regularly to practice, support and encourage ourselves and each other in using mindfulness along our individual journeys of living with cancer, and when the time comes, dying too I guess. Some members of the group have advanced, secondary or terminal cancer diagnoses. Whatever name is used to describe their condition, they are facing the likelihood of death sooner than the rest of us.

Two of the group are Rebecca and Uwe (neither of whom have a terminal diagnosis). Uwe is an older German man, who is short and stocky, with large round glasses that give him a slightly gnome-like look, without the regulation beard. He has an endearing vulnerable quality, which people respond readily to, as have I. He is probably the most familiar with and most committed to mindfulness. We have become close friends from hours sat around the kitchen table at Maggie’s sharing and revolutionising. Bloody anarchists!

Rebecca is younger than me, intelligent, passionate, creative, interested in so many things, and talkative. Can you see why we might get along? She has had a very rocky journey through cancerville, which I won’t go into here, but suffice to say, we have a similar attitude to living, dying and how we experience and respond to what happens in between. She has also been leading the Maggie’s singing group, which is going from strength to strength.

Rebecca has recently suffered, along with but probably entirely separate from the many complications of cancer treatment, a slipped disc. She spent more than twelve hours in pain awaiting an air or road ambulance to take her to hospital three weeks ago.

While she was well-looked after during her nine night hospital stay, they messed her around terribly when she was ready to leave – around day seven. Again she had to wait unnecessarily, this time for a Senior Occupational Therapist to assess her needs for returning home. This whole issue also deserves its own post, but it’s not my story, so it won’t happen here.

Fed up and frustrated, she walked… with the aid of crutches and her husband, out of that damn place, and went home on Wednesday night. Well done Becca! Patients taking charge!

Meanwhile, back at home, using a borrowed bed in her living room and various OT appliances, she made herself as comfy as possible, but was getting increasingly bored. Time for Uwe and I to go visit a couple of Sundays ago.

Armed with a large bar of Cadbury’s fruit and nut chocolate, plus a Terry’s chocolate orange, we turned up to find Becca moving quite well. At one point she even went upstairs and down again, I was well-impressed.

pomander 1When I visited her in hospital a few days earlier, we had spoken about creative stuff she could do while she was stuck at home. I came up with the idea of making orange pomanders, which I make most years, but actually haven’t done so this winter, so far. So that evening, I took oranges, cloves, ribbon and little skewers and handed them out. I showed them how to get started and let them at it. Meanwhile, I knitted.

The room was cosy, the tea flowed, sometimes made by me, sometimes by Becca, there was music and ambient lighting. The atmosphere was so lovely, I felt like I’d fallen into a Victorian Christmas scene or something.

And so we chatted gently and each did our creative thing, with little pauses of quiet, then someone would speak up and we got to know each other a little bit better. It was a special time and a very unplanned period of mindfulness that just happened because we were in the right space with the right people. Thank you both for that and for allowing me tell our tale. I’m looking forward to meeting up again. Hopefully in the new year, Becca will be up and about and we can meet up at Maggie’s again and continue our mindfulness practice.

Between us, we have breast cancer, prostate cancer and myeloma… Thus breasts, balls and bone blood!

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About Jet Black

I began blogging because having been diagnosed with Multiple Myeloma, I wanted to share my experiences of living with an incurable cancer. Through blogging, I discovered that I enjoy writing. I have always chosen to live life for the journey, more than the destination. This is as true for the act of writing as it is for living with myeloma, so these are two things I do: I live and I write!
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7 Responses to Welcome to the breasts, balls and bone blood gang

  1. Terri J says:

    Sounds like my family. Although it was 8 years ago I had breast cancer. My daughter was diagnosed with Myeloma at 32 in 2012. My husband had prostate cancer 3 months later. Who knows where all this cancer came from since there is no family history of any of it. I haven’t had any formal mindfullness training but after the year 2012( the worst year of my life) I have found when I am razzled to take a step back, have a cup of tea & listen to the quiet. It helps a lot.

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  2. Jet Black says:

    Yes, Terri, listening to the quiet is a lovely way to express it and such a calming effect. Glad you’ve found it.

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  3. Becca says:

    It was indeed a great night Jet. I found it a very uplifting evening and was more than welcome after a few days feeling rather low and a tad sorry for myself. It was lovely to see you both and I really appreciated you and Uwe making the journey to me on such a damp and chilly night.

    The evening was really enjoyable: Relaxed, calm and creative. The conversation flowed so easily and and it was a great pleasure to take part in a creative activity with you. A lovely surprise…. Just like the chocolate!

    It’s something I’m now doing more and more. Crafting is one great positive that has come out of my diagnosis and has gradually increased over the past 3 years as my health has stabilised. Prior to this, I always seemed to be putting things off and feeling too busy. I was mostly working hard or resting hard, due to post-work tiredness and a lurking tumour I was yet to discover. My love of crafting and creating got pushed aside and dwindled over time to almost non-existence.

    But then cancer made it’s appearance and it’s taught me a lot… One thing, is to grasp opportunities as they present themselves: To try new things, make more meaningful relationships, to learn and share more and to use my time well. This most definitely includes finding regular pauses to be creative. Having been forced to slow down I’m now more aware of my needs and wants and I’m a happier person for it, on the whole.

    Making the pomanders was great fun and a lovely idea. So thank you for that and bringing the necessaries. Finally, on the subject of creativity, I think you will be pleased to also know Jet, that since our evening together and watching you happily knit, I have dusted off my needles and begun knitting myself a new scarf. I had kind of lost momentum, but seeing you making your beautiful gloves made me want to knit again and I love how it looks. So it seems I owe you another thank you Jet, ha ha. How do you fancy a knitting sess another time? 😉 XX

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  4. There it is, Jet’s signature humor.
    Precious.

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