Reactionary

mosquitomosquitomosquitomosquito

Summertime,
And the livin’ is easy
Mosquitos are bitin’
And the cotton is high

Paraphrased from George Gershwin

Oh dear! These little fellas are causing me all kinds of problems. (I understand that it’s the male mosquitos who make that irritating buzzing noise, perhaps to distract us, while the quiet female stealthily nips in for a nip.) I’m sure I’m not alone, but this summer, the first time since the transplant that I’ve been around mosquitos, or they’ve been around me more to the point, I am reacting very badly to bites.

I don’t know if it’s due to my new immune system. Maybe my generous stem cell donor has also given me an inherited allergic reaction? Or it could be down to my immune system being compromised and therefore unable to cope with the onslaught of mosquito venom.

I’m sure they must be a tasty treat for some creatures along the food chain, but really, other than that, what on earth are the benefits to the world of mosquitos? Would the planet be a poorer place if they died out, instead of the Bengal Tiger, for example?

According to the NHS Choices website:

Insect bites and stings usually clear up within several hours and can be safely treated at home.

Hah! Not for me!

They also say:

Bites from midges, mosquitoes and gnats often cause small papules (lumps) to form on your skin that are usually very itchy. If you are particularly sensitive to insect bites, you may develop:

    • bullae (fluid-filled blisters)
    • weals (circular, fluid-filled areas surrounding the bite)

Bullae – yes! Weals – no! Well, that’s one less thing to deal with, I guess.
Finally, and this is more like it, in the section entitled ‘Allergic Reaction’:

Most people will not have severe symptoms after an insect bite or sting but some people can react badly to them. You are more likely to have an allergic reaction if you are stung by an insect.

No, not me. Mine is from bites… definitely, bitingly, bites!

If you have a large localised reaction (LLR) after being bitten or stung by an insect, a large area around the bite or sting will swell up. The area may measure up to 30cm (12in) across, or your entire arm or leg could swell up.

That’s more like my experience!

The swelling will usually last longer than 48 hours but should start to go down after a few days. This can be painful but the swelling will not be dangerous unless it affects your airways.

Phew! It’s not dangerous. Nor is it painful to be honest, just distractingly, almost unbearably ITCHY!!!

mosi-guardI tried all sorts of preventative measures, like Mosiguard, which I bought before going away. It’s “a naturally occurring extract of lemon eucalyptus oil” that you roll on like deodorant. It stinks! And it wasn’t terrifically effective.

mosquito_repellent_wristbandI tried a wristband which my aunt generously lent/gave me, where you insert a waxy block infused with mosquito repellent into a little pocket in the band. I didn’t realise it was a wristband, so I wore it around my ankle – that’s where I was getting bitten.
It was a bit tight and no, it didn’t stop the little bleeders.

I also used citronella oil, whose smell I really like and reminds me of summer, but was equally ineffectual. And I refuse to use anything with DEET – it’s just too nasty!

So, what can I do? I think I just have to deal with the consequences of being bitten…

IMG_1457IMG_1471While I was on holiday in Italy I had matching blisters on each foot. I managed not to scratch or pop them and fortunately they both healed without too much trouble. But each foot itched like crazy for days, especially at night, despite antihistamine cream.

As you can see above and here below, my ankle bones pretty much disappeared with the swelling.

P1070130

This was after I’d already had a blister on my left foot in the first few days of the holiday that the same aunt kindly punctured with great care and a sterilised needle. It healed beautifully.

IMG_1463IMG_1480But it wasn’t just my feet… Check out the swollen neck that almost looked like a goitre and this attractive reaction on my leg. Swollen became an identity, not just a word. Not to mention, did I mention the ITCH that I had to resist, resist, resist the urge to scratch for DAYS!!!

I saw my doctor a couple of days ago and mentioned the bite reaction problem, in the hope that she’d suggest or prescribe something effective. She did prescribe Cortopin steroid cream to help soothe the itching – it didn’t!, along with Citrizine antihistamine tablets to help reduce the inflammation – it didn’t either!

IMG_1809Allow me to introduce my most recent proud exhibit, which I didn’t even have to go abroad for. This beauty was caused by delightful home-grown critters, right here in the UK. Maybe it’s not obvious, but it’s my lower arm. Immediately below the elbow (below the doorknob) you will see that it is swollen. What you cannot see is that it is almost continually itchy… and hot!

Nothing, I repeat NOTHING helps, the itch is everything, all pervasive, omnipresent. The itch is god! Of course, if I scratch, when I just can’t help myself and have to surrender to the power of the itch, the relief and the pleasure from scratching is immense.

20130810-031224.jpgBut scratching brings its own problems of course – even when I make sure not to actually scratch the bite itself and not to break the skin – like this wound, which oozes clear watery pus and seems to be taking forever to heal, despite being alternately left uncovered to get fresh air, and being protected by careful application of a sterile dressing or plaster.

Yesterday, I took one of my new Citrizine tablets around 6:00pm. I was still itching at 11:00pm when I went to sleep. Not only did it not stop the itch, nor reduce the inflammation, but the ‘drowsiness’ they warn can happen, did happen… I managed to sleep right through my alarm this morning, only waking around 9:30. I’ll remember that the next time I can’t sleep.

I’m trying to be brave and obedient and put into practice some things I learnt on a recent mindfulness course, allowing myself to just be with the feeling of itch without necessarily having to respond to it. Not always so successful! It’s a bit like being left in a room with a great big chocolate cake and no one around to see you take a bite. And then there are the times when I just abandon all semblance of restraint and give myself over to wholehearted, delicious scratching and revelling in the relief it brings.

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About Jet Black

I began blogging because having been diagnosed with Multiple Myeloma, I wanted to share my experiences of living with an incurable cancer. Through blogging, I discovered that I enjoy writing. I have always chosen to live life for the journey, more than the destination. This is as true for the act of writing as it is for living with myeloma, so these are two things I do: I live and I write!
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12 Responses to Reactionary

  1. Enrico Crocetti says:

    Hi, it’d been a while… Hello! Maybe see an allergist ? Might be you are forming a histamine reaction? Good luck love.

    Sent from my iPhone

    Like

    • Jet Black says:

      Hi Enrico. Yes, it has been a while and might have been even longer, as your comment went into my Spam folder. Thanks for your comment. Yes, it is certainly a histamine/alergic reaction. I don’t think seeing an allergist would be of any benefit as I already know what the problem is and have been prescribed all the possible products to deal with it. Would that they worked!

      Like

  2. Susan says:

    In Louisiana, mosquitoes are all over the place. We just don’t go outside much in the evening, when they are really active.

    Like

    • Jet Black says:

      How miserable for you!

      I’d need to not go out at all and close all doors and windows. Most of my bites at home have been indoors.

      But today I was in the garden mid-afternoon and looked to see what was tickling my arm and saw a little madam about to take a sip of my currently healthy blood. So, I’m not sure your method would work.

      Hey, I wonder if mosquitos get myeloma if they bite someone with active disease?

      Like

  3. Mum x x says:

    Through many years of suffering bites, stings and a variety of allergic reactions I have found ZIRTEK to be by far the best anti-histamine there is. Don’t let doctors or pharmacists tell you it’s the same as anything else, it isn’t it’s better! For topical application the only thing that works at all is the Benadryl spray they sell here. Or oddly the Anti-itch gel made by the makers of Band-Aid. In a tube, transparent sticky get, very cooling..

    Like

  4. Hi JetBlack,

    I have found that I too have hypersensitive skin reactions since being on lenalidomide. The itching is unbearably, I also get the ankle swelling and blisters.

    The product I found that is helpful is Caladryl. It is a combination of calamine and benadryl lotion.
    I carry it with me to parks, beach or just sitting outdoors on the bench. It relieves the itching and it takes away the blistering.

    You may find it helpful too. Sometimes the generic product is simply called Anti-Itch Lotion. It works wonderfully well.

    Hope this helps
    suzierose

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  5. This sounds miserable! My husband had three very itchy bites on his ankle and they were driving him crazy….nothing like you have been dealing with, but annoying. We had heard that vinegar would help the itching so he tried it. There was quite a bit of stinging at first because he had scratched the bites raw, but the itching subsided. Maybe vinegar would give you some relief. Good luck!
    Love,
    Carole Leigh

    Like

  6. Oh heavens! How awful for you! I am very sorry you’re experiencing this. I would have clicked the like button on the post, but I don’t like this at all. I hope you are able to find something that will repel the rapacious little buggers soon. I also hope you’ll find relief for the problems they’re causing you when they do bite.

    Hugs!

    Like

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