The week of 21 to 28 June was Myeloma Awareness Week. So this is a bit late, but I guess if you’re reading this blog, then you’re already aware of myeloma. But you may not know about Myeloma UK…
Myeloma UK is the only organisation in the UK dealing exclusively with myeloma. They provide excellent support and information for people affected by myeloma.
They work with:
- Patients, carers and family members, to help them cope with everything a diagnosis of myeloma brings
- Doctors and GPs, to find better ways of diagnosing and treating myeloma
- Nurses and other healthcare professionals, to improve care for patients
- Researchers, to improve treatments, reduce side-effects and develop preventative and curative strategies
- Other charities, government and the pharmaceutical industry, to ensure patients have access to and receive the best possible treatment and care when they need it
I’ve had contact with them a number of times, as a patient, a support forum member, an attendee and then presenter at two Info Days and as a proof-reader/advisor for a new Information Pack for newly diagnosed patients. Everyone I’ve had any dealings with, from the initial phone reception all the way through to Eric Low, the Chief Executive, is so human – kind, supportive, friendly and genuine. It feels less like seeking support from an organisation and more like calling a friend of a friend for a favour.
Her husband, the playwright, Jack Rosenthal died of myeloma in 2004 at the age of 72.
For Myeloma Awareness Week, Myeloma UK have created this cute, simple video to help spread the word. Take a look – it’s short, easy to watch, doesn’t contain any gore at all and has a happy banjo tune…
Thanks for watching! Feel free to share anywhere – that’s what it’s designed for.