Thank you!

I just want to say a big thank you to all the people who read my blog and an even bigger thank you to those who comment and ‘Like’.

I can’t quite work out how to see who has ‘Liked’. I think a Gravatar icon is supposed to appear for each ‘Like’, so you can click on them and find out more about the person or their blogs, but that isn’t happening. If anyone has an answer, please let me know. I think the ‘Likes’ are from other WordPress bloggers, so it’d be good to see who you are as I might want to follow your blogs too.

While writing is an enjoyable activity and a useful tool for me to sort out my feelings about all of this living with myeloma malarky, as well as sharing the medical/treatment aspects and updates, it can also be quite a lonely activity.

It is so heartening to see that people do actually read my musings and when you comment, it encourages me, both in my writing and in my sense of adventure on this mad journey of myeloma. I shan’t use the word ‘healing’, as this has not always been and may not always be the case. It’s more of a roller-coaster ride, a bumpy journey (and I know about those, having travelled by bus through Indonesia), or as one blogging buddy calls it, a long and winding road. But whatever the future holds, writing about it feels important; it stabilises and nurtures me. Knowing that others enjoy reading it, are supporting and encouraging me, and can relate it to their own experiences really means a lot, so please continue.

This is one of my favourite songs… It might just have to be on the list for my burial party.

It feels good to be acknowledged when I post comments on other blogs, even if it’s just a thank you. Sometimes it becomes more of a dialogue and then I start to feel like I’ve made a new friend. So, with that in mind, I have decided to respond to comments from now on. That’s not to say that a dialogue has to ensue, or that I will have much to say other than “Thanks!” But I hope that those who comment will appreciate that feeling of being acknowledged.

And to make up for not responding in the past, I would like to acknowledge all those who have read and commented up till now, amongst whom are old friends and new, family and strangers, people living with myeloma, leukaemia, lymphoma or another cancer (three of whom have since died), carers of partners with cancer, those who are just thoughtful about life and living and some I know nothing about…

I appreciate you all: Adam Black, Alona Ashkenazy, Amiee Ross/Beardo, Amy Soprano, Astrid Faber, Barbara Coulson & Chris Baxter, Carole Leigh Ingram, Cathy Naumann, Catriona Yule, Claire Nance, Colin & Barbara Michaels, Deb Gascoyne, Debbie Helme, Delia Grodner, Denise, Eden Morris, Elizabeth Ellen, Enrico Crocetti, Erica Böhr, Evelyn Silver, Ginnie Godoy, Helen Gifford, Isabelle Ben Shlush, Jane, Jeff Kerkhof, John Snippe, Joy Parsons, Julie Zimmer, Justina Nurse, Karen Sutherland, Kev & Mel, Kevin Kirk, Kim Fox, Kim Pember-Thomas, Kris, Lesley Towl, Lieve de Boeck, Lilian Black, Lorna Austins & Mike Gormley, Lorraine, Lynn Barlow, Mal Dexter, Marie-Chantal Marchand, Marisa Miller Wolfson, Marni Rubin, Mary Ann Weyer, Mary Pat Druschel, Matthew Middleton, Maureen Mooney, Mavis Nevill, Megan Williams, Mel Wraight & Kate Shaw, Morag Christie, Nancy Lange, Natasha Feldmann, Natasha Golding, Omar Toselli, Pam Smith, Paul Creek, Paula, Pauline Selston, Rachel Auckland, Rachel Feminista, Rachel Phillips, Ramona Ionas, Rhiannon Flood, Sandra Abraham, Sandy Banks/Annie Sargent, Sarah/Strange New Courage, Scott Canfield, Sean Tiernan, שי/Shay from Israel, Shelley B, Simon Hancox, Sophie Meert, Suzanne Kelley/Kelley Campbell, Tânia de Carvalho, Terry from New Jersey, Tom Lappin, Val Robus, Wendy Duffield.

I just counted and there are 86 of you! I’m touched. Thank you! x

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About Jet Black

I began blogging because having been diagnosed with Multiple Myeloma, I wanted to share my experiences of living with an incurable cancer. Through blogging, I discovered that I enjoy writing. I have always chosen to live life for the journey, more than the destination. This is as true for the act of writing as it is for living with myeloma, so these are two things I do: I live and I write!
This entry was posted in * Myeloma and tagged , , , . Bookmark the permalink.

40 Responses to Thank you!

  1. Lorna says:

    Crikey that’s one hell of a list Jet. 🙂

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  2. Morag says:

    You’re welcome! 🙂

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  3. Rhiannnon says:

    Loving the gratitude pouring from your words. Thank you Jet! I always read your posts with avid interest. Your experiences are valuable treasures, thank you so much for sharing them. Love, R x

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  4. Thank you Jet, I really enjoy reading your blogs.

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  5. Jet Black says:

    Thanks Megan! I appreciate your support. x

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  6. I quite enjoy your blogs.
    Hug and kisses
    MC

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  7. Lorraine says:

    I am travelling on this long and winding road with myeloma. Diagnosed five years ago and seeing my haematologist again tomorrow. I love reading your blog. You are an extremely good writer and should think of writing a book. Best of luck with the rest of your journey. Lorraine

    Like

    • Jet Black says:

      You too, Lorraine. I’m so glad you’ve commented again. When I looked through the list, I wondered what was happening with those who’ve commented in the past. Good luck tomorrow. And thank you for the compliment about my writing.

      Like

  8. Ginnie says:

    you are always so eloquent, Jet. I learn so much about MM and the journey of life when I read your musings, thoughts, and introspections. Thank you for sharing of yourself and your journey, your wisdom shines.

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  9. Mavis says:

    Hi Jet
    I know that lots of us appreciate you putting so much effort nto recording so honestly your MM journey. It is good that you are making something positive out something so aweful. And do hope that you are finding lots of folk are signing up as donors.
    I wish I could put my journey into words so eloquently. I have to limit myself to some comments on the Myeloma UK Site. Not having a Support Group in the Bradford area, I have found it a real support. The Specialist Nurses aren’t proactive here so it is good to be able to get reliable information elsewhere.
    Very best wishes on your jpurney. May it be long and as good as can be possible.
    Mavis x

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    • Jet Black says:

      Thanks Mavis. Perhaps you could write about your journey. I find it helpful. It doesn’t have to be great literature. In fact it doesn’t have to be judged in any way at all, or even shared unless you want to. But you might find keeping a journal, whether on paper or online helps you find your way. Or maybe you could set up a support group. Perhaps put up a poster at the clinic, or ask the nurses to help you? Whatever you do, I hope your journey is long and uneventful, in the best possible way.

      Like

  10. MakingSpace says:

    Oh my gosh, I was just reading along with a smile, and then I got to that list and burst into tears. Jeez, I can’t even remember now how I got to your blog, but I feel very honored to be newly in such company. I send you all my best thoughts for your journeys. (Also, suddenly my rather busy work schedule which was stressing me out, feels like absolutely nothing. So thank you.)

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    • Jet Black says:

      Thanks Amy. I was also wondering how you found my blog. Guess it’ll remain a mystery. LOL! But glad to have you on my list. I look forward to reading more of yours too.

      Like

    • Jet Black says:

      I also felt emotional when I saw how many people had commented, how many different people from around the world my blog has reached, touched, had an impact on. I was especially touched when I came across the names of people who have died since, all three were myeloma patients and quite young. There are others who I know are currently going through tough times, who are in my thoughts. And some I’ve not heard from again, so find myself wondering what’s happened to them and how they’re doing.

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  11. I have really valued reading your words Jet and your blog is one of the reasons I started blogging again myself. I haven’t seen you in person for a while so haven’t had a chance to tell you that after reading your blog, I have signed up on the bone marrow register, not Anthony Nolan Trust because I’m too old for that one now. I also proposed Anthony Nolan Trust for the charity that my work LGBT forum supports so we have started raising money for them. I’d like to talk to you soon about the possibility of arranging a recruitment and fundraising event with you speaking to help people understand why it’s so important. I know what it is like to write blogs and wonder what people make of them, comments often seem to be few and far between so it can feel like thinking out loud on your own. After reading this blog I have realised that I need to make my reader presence known more with the blogs I read so that those writers can know how much of an impact they make on my thinking and decisions. Thank you sincerely Jet, for all that your writing does for so many people!

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    • Jet Black says:

      Oh Rachel. Thank you so much. That means a lot. I’d love to help you organise a recruitment event. I’ll email you and we can plan something. So pleased you’re blogging again. I’m following yours but not had the chance to read much yet. I will!

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  12. I hope last is not least!
    My sister found me your blog through which we became acquainted in the virtual world and then firm friends and travelling companions along the long and winding road of our myeloma journeys and some other places too! Discovering you and your blog shortly after I was diagnosed was comforting to me and of course I was inspired to start my own blog later on. As a fellow blogger I know how much comments mean to me, even a few words of acknowledgement or a like, are gratefully received and as a commentator its nice to be thanked too and I say to you Jet, de nada!

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  13. scanfie says:

    Hi, Jet:
    I read your blog and others. I don’t comment often, but I’m trying to improve that. I see Sean’s name next to mine on your list. I remember he posted once about the difference in driving his Toyota Supra or his Citroen. I was going to comment, “The Supra looks much better on you, Sean.” But I didn’t. I thought to myself, I don’t know him, he doesn’t know me. Shortly after that, his brother posted that he had died. I wished I had made contact.

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    • Jet Black says:

      You’re so right, Scott. That’s such a British thing, isn’t it? I’m so glad you’re still reading… and commenting. Good to have you on my list! Hope it’s all going well for you.

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  14. Jet, you are a wonderful writer and I always look forward to your honest and candid updates!

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  15. Lilian Blacck says:

    I rarely leave a comment because I’m your Mum and it seems obvious I’m involved in reading your thoughts, histories, notes, involvements and so on. But don’t think for one moment that a missing comment means a missing reaction. I just don’t want to get in someone else’s way. I can tell you my thoughts – though I’m aware that I don’t always do that. I tend to think you can read my mind when of course the “course” of reality has often proved how much we differ.
    Nonetheless ….. LB with much love xx

    Like

    • Jet Black says:

      Thanks mum. I know you always read my blog and respond one way or another, however much we differ. And I appreciate your occasional responses here. You will never get in someone else’s way. Love x

      Like

  16. Lexie says:

    Just popped over from Making Space where I really enjoyed your comment and the link to Jeanette Winterson! I look forward to reading more here 🙂 And, so very cool that you have all these wonderful people to support you and share in your journey- that’s what it’s all about!

    Like

  17. Sylvia Gash says:

    I read your blog also but usually do not comment. I love your Mum’s comment!

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  18. jet, you darling thing! i can hear such gratitude and happiness in your voice, it just makes me a little (happy) teary. with all you have been through, that you have taken such time, effort and care to chronicle your story and have helped hundred and hundred of people, i feel overwhelmed that my name is in that list. thank you. and oh, your mum sounds so lovely. it is a privilege to me that i found my niche in being karen, TC (the commentor), after hugh’s diagnoses of MM 3+ years ago, then mine with ST IV metastatic breast cancer 13 mos ago, i became a blogger wannabe. alas, with both of us running from medical pillars to posts, plus dual (dueling?!) chemo brains, i simply couldn’t find the time nor the emotional/mental energy to do so. but i did so want to lend my support, tell a bit of our story when it related to either disease, and got totally hooked on the joy of making such incredibly generous, kind, and accomplished blog writers dear and cherished friends. and you have always welcomed me and made me feel so included – that means the world to me, that in some way i have been given a voice. i read your post, and i also take note of your responses left on other blogger’s post. i find your empathy, encouragement, kindness and honesty extraordinary, and i wish you continued fulfillment and joy in this marvelous body of work.

    i will be BELIEVEING for you for continued good health – celebrate and do the happy dance – you DESSERVE IT!!!

    LOVE, XOXO

    karen, tc

    Like

    • Jet Black says:

      Oh Karen, how very kind and complimentary. Thank you very much. No, thank YOU! No, no, thank YOU! LOL!
      We could keep thanking each other over and over, couldn’t we? Good to have you on board and please keep commenting, Karen TC! x

      Like

  19. Chris Baxter says:

    Well, we like you too! It is easy in current good health to forget about ‘how it is’. Popping back here to read from time to time helps, so please keep it up!

    Like

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